What does it take to make a young terminally ill patient ‘feel like a princess’ in the last days of her life?

Chloe from Callington, Cornwall was just 22 when she came to our specialist unit at Turnchapel to be cared for by our team in December 2017. We pulled out all the stops to create a home from home for her and her loved ones. We helped them make precious memories together, too.

Sadly, Chloe died a few days later, in January 2018.

Here, Chloe’s mum Claire shares her experience of the devastating loss no mother should ever have to face and pays tribute to kind, caring, fun-loving Chloe. Hear how the precious moments they shared when time was running short – and the lasting legacy Chloe has left – bring comfort to Claire in the midst of heartbreak.

Our end of life care is here for young people as well as the elderly. You can help our charity to keep making a vital difference for them and their families 365 days a year, including this festive season – please donate today.

Thank you.

 

A homegrown hero of the storytelling world, who has ignited the imagination of millions worldwide with his bestselling children’s books featuring fiction’s favourite elephant, is returning to Plymouth for a very special event!

Plymouth born David McKee, celebrated author and illustrator of the much-loved Elmer storybooks – which have sold a staggering 10m copies around the globe – is in the city for the 30^th anniversary of his first Andersen Press Elmer publication and he’s set to launch Elmer’s Big Parade, Devon and Cornwall’s biggest art event of 2019, on Monday 8 July.

The Parade, an enchanting trail of 40 unique elephant sculptures lovingly painted by established and emerging artists, including internationally renowned Brian Pollard, will spread a smile across Plymouth and surroundings for ten weeks until 16 September.

The free, family-friendly event – a collaboration between St Luke’s Hospice Plymouth, Wild in Art and Andersen Press – is expected to attract 250 thousand visitors to Plymouth and surroundings, as well as encouraging local people to get outside to discover each member of the mammoth mob, taking them to places they may not have been to before. Along the way, it is expected to bring a huge boost to the local economy, benefiting businesses from shops to restaurants.

These are no ordinary elephants – they’re on an important mission to raise awareness and funds for St Luke’s and the vital service the charity provides, looking after terminally ill patients and supporting their families when time is running short.

Each of the sculptures is sponsored by a local organisation, including businesses of all sizes, with headline sponsor for the event being Stagecoach South West, the region’s leading bus operator.

The much-anticipated Parade is the culmination of months of preparation as the 40 artists selected to paint an ‘Elmer’ worked their magic, some of them based at Herd HQ within St Luke’s pop-up shop selling quality second-hand furniture at the former Toys R Us store at Western Approach, where they have welcomed visitors keen to get a sneaky peek before the big reveal of the finished masterpieces.

A key part the Parade is the educational programme that has engaged 10,000 students across 25 local schools, generously funded by the Thomas Cook Children’s Charity.

Not only has the St Luke’s Education team encouraged the schools to have tonnes of fun learning more about art and creating their own unique mini Elmer, all of which will be on display at Mount Edgecumbe, they’ve come alongside school staff to enhance their confidence and skills in supporting children living with loss.

It’s estimated that 1 in 29 children – one is every class – has experienced the death of someone close to them, so St Luke’s is working with teachers and other staff to encourage more open conversations with youngsters about death, dying and bereavement, which – when conducted sensitively in an age-appropriate way – help ensure no child feels left behind.

Elmer’s Big Parade Plymouth officially launched early this week at a special preview evening, where all 65 Elmer’s were gathered together under one roof for a big reveal to sponsors and artists. Alongside local artists including Brian Pollard was a very special guest – David McKee.

Elmer creator David McKee, grew up in Tavistock and was educated in Plymouth he said: “The pleasure that you can feel that the illustrators and painters have had working with this, there’s a real excitement to be had with this project, which is incredible.

“I’m 84 now, so I’ve seen the way hospices help families. The hospice isn’t just a building that people go to – while it is a big part of it, an even bigger part is all the work which is done in the actual homes of the people who are suffering. A lot of people would prefer to stay in their own home, and St Luke’s helps them to do that.

“To find out there’s such a high percentage of children who know bereavement through the loss of someone close, and that St Luke’s is very involved in helping the children get through those periods, it’s incredible.

“It’s quite emotional really, knowing that something you started that long ago is not only still around, but new things from others have been made because of that. I suppose in a way, there is a sort of responsibility which you feel. Especially when you realise that it’s not just decorative – the cause is such a good one. Helping St Luke’s in any way is a good cause.”

On meeting David, local artist and St Luke’s patron Brian Pollard said, “It was such an honour to meet and talk to the famous creator of Elmer, David McKee. David was delighted to see his creation come to life with the wonderful creativity of mainly local artists. I was surprised to hear that he had also visited a local gallery to view my paintings and he went on to make some positive remarks about my artwork.

“I think I can speak for all the artists when I say we are all honoured and delighted to be involved in such a wonderful fundraising project, for a charity that is so close to all our hearts.” Brian’s Elmer will be on display outside the Theatre Royal Plymouth.

For many of the artists, the trail has a real personal connection. Local artist Colin Pethick’s involvement was a chance to support St Luke’s and at the same time pay tribute to his wonderful wife Zheng, for whom the charity cared for before she passed away he said: “It was so inspiring to see all the Elmers together, truly mind boggling how so many fantastic ideas have formulated from one form, good old Elmer. To meet David was such an honour. I was moved greatly by the smaller Elmer’s also and the participation of the school children. It is so important to me as an artist that we inspire and encourage the young creative minds and also through that process educate on the notion of bereavement. That for me was why I was so pleased to be invited to take part in the project. It was such a valid form of cathartic release for me personally. Thank you again St Luke’s for everything.” You can see Colin’s Elmer titled “The Beauty of Transcience” displayed on Plymouth Hoe.

St Luke’s Chief Executive, Steve Statham, said: “The wait is over and it’s time for the grand reveal of Elmer’s Big Parade! We couldn’t be more excited to see everyone get out and about across our city’s iconic locations to follow the herd.

“The Parade is going to be a real delight for people of all ages as they explore on foot and interact with the social media side, too. Along the way, they’ll learn more about the outstanding care and support St Luke’s provides for patients at home, in hospital and at our specialist unit at Turnchapel.

“We believe everyone deserves to live well to the end, and it’s only thanks to the kindness of our community that we can sustain our service, being there to make a difference and helping families through the most challenging of times.

“The support of local businesses is a critical part of this, and the way they’ve got behind Elmer’s Big Parade as sponsors is heart-warming. There’s still time for more to be part of one of the city’s biggest events and get their brand in a prominent position seen by thousands – a great opportunity to raise their profile while doing good.

“To everyone who has put in the hours and gone the extra mile to make this fantastic summer extravaganza happen, I want to say a huge thank you. It would not have been possible without our hardworking staff and volunteers, as well as our sponsors and the companies who have given in kind. I feel very proud to be part of such an incredibly caring community.”

Bob Dennison, Managing Director of Stagecoach South West, the headline sponsor of the trail, said: “We are thrilled to be Presenting Partner and supporting such a wonderful charity. We will be working to help raise awareness of Elmer’s Big Parade Plymouth and the incredible work done by St Luke’s, and of course help raise vital funds. We work to support a range of local community causes in the South West, the very communities we help bring together through our local bus services. It’s fantastic to see the excitement about the trail already starting to build and we are delighted to be backing such a fabulous and worthwhile fundraising campaign.”

The grand finale of Elmer’s Big Parade will be the auction at which the Elmer sculptures will be going, going, gone to raise funds for St Luke’s.

The official trail map is available to download via the App Store, Google Play or available in print at local tourist information and St Luke’s charity shops.

For more information about the Parade and how you can get involved, visit: www.elmerplymouth.co.uk or follow the trail on social media @ElmerPlymouth #ElmerPlymouth.

When someone is perfectly suited to their job and loves what they do, it shines out of them when they’re speaking about their work.

Within a very short time of meeting Dr Sioned Evans, St Luke’s Consultant in Palliative Care in our Community team, it’s obvious just how passionate she is about her role and how dedicated she is to providing the very highest calibre of care for patients at such a vulnerable time, which also helps those around them.

While she is already a familiar face at St Luke’s, having worked within our team at Derriford Hospital since 2013, Sioned’s full-time role within the Community team is new, building on the work of Dr Doug Hooper who is now able to dedicate more time to end of life patients at the hospital, and Dr Jeff, who continues to cover community MDT in Cornwall. This development is a natural progression for our organisation as we adapt to the changing needs of those in our care, the majority of whom want to be looked after at home in familiar surroundings and close to loved ones.

Sioned initially trained as a GP before commencing her palliative care registrar training in Plymouth and in Exeter and Torquay. In 2017, she was appointed as a Consultant at St Luke’s.

She said: “I’m driven by a strong desire to make a difference to people who are nearing the end of life even when others might think there’s nothing more that can be done. While we cannot take away the inevitable, I believe there is always something we can do to ease things for them and make their journey as good as it
can be.

“It is hugely rewarding to be part of such a lovely and dedicated team. From our nurses to our occupational therapists and physio team, our social care team to our clinical admin staff, everyone is completely committed to doing their very best for our patients and their families, taking the time to understand their needs and tailoring our holistic care and support accordingly.”

With such invaluable specialist experience in caring for terminally ill people at end of life, Sioned’s presence and advice gives the team around her, which includes our Community Specialist Nurses and End of Life Urgent Care staff, the confidence to care for patients with the most complex needs. This is also very helpful to patients’ GPs and in turn aims to reduce unnecessary acute admissions to hospital or our specialist unit.

Sioned, who is married to Andy, Spiritual Care Specialist at Rowcroft Hospice in Torbay, and has two children, said: “For me, this is the perfect role as I can draw on my experience as a GP and a palliative care physician. And having had the privilege of working across all three of St Luke’s care teams means I have gained awareness and understanding of the particular nature and pressures of each.

“It’s been a real period of transition in the Community team with new staff and office changes, as well as new IT systems, but we know it’s all positive and will further enhance patient care.

“Already, our service is benefiting from having a single point of access and the multidisciplinary team meetings that are now daily, which means we can respond more quickly to the changing needs of our patients.
There are other exciting developments ahead, too, as we work towards digital consultations with other healthcare professionals and closer working with community hospitals, such as Tavistock.

“Joining the Community team has been a huge learning curve for me and I’ve been made so welcome. I’m so impressed with the professionalism of everyone and very excited that we are continuing to develop our service, keeping it patient focussed and making it the most safe and effective it
can be.”

St Luke’s is renowned for going the extra mile for our patients and their families, and we have long been respected for the way we innovate to meet their needs.

Now we are the first hospice in the UK to embrace the new ‘cuddle bed’ that is both helping patients safely receive the care they need and find comfort and solace in the arms of those they hold dear.

At the touch of a button, the special bed, which was installed earlier this month at our specialist unit at Turnchapel, expands from a space-saving single into a comfortable double so a patient can be close to their partner and not separated because of their condition. It also means the young families we support can snuggle up together and enjoy cuddles that are precious beyond words.

Nicola Pereira, Head of Inpatient Nursing Services at St Luke’s, said: “We have always tried to provide the best care we can and go that bit further for the patients we care for. I always imagine a couple who have shared a bed for their entire married life – once one becomes unwell and needs care they have to be nursed in a single bed. What a privilege to be able to offer that couple the opportunity to share a bed once more, and even more special at the end of life.”

This fantastic addition to our specialist unit has been made possible thanks to the kindness of those who keep our charity close to their hearts. We’ll share the inspirational story behind their fundraising later this year and, in the meantime, they’ll know that they’re bringing comfort to other families and helping them make every moment count when time is running short.