Tag Archive for: hospice care

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How experience of St Luke’s care inspired Midnight Walk co-sponsor

When Gordon Maunder’s mother, Christine, was approaching the end of her life, St Luke’s was there by the family’s side, enabling her to spend her last days, comfortably and without pain, in her own home.

This memorable first-hand experience of St Luke’s services inspired Gordon, company chairman of Marchand Petit estate agents, to make the business proud co-sponsors of this year’s Midnight Walk.

Gordon describes his mother as “small, dark and dangerous”, and a lover of playing bridge and gardening. She had been receiving treatment for ovarian cancer before learning that her illness was terminal. A dear grandmother and great grandmother, she died in February 2022 aged 88.

“She was only 5ft but no pushover! The one thing she didn’t want was to go into hospital to die,” said Gordon. “It was massively important to Mum to be in her own home at Wembury that she absolutely loved.

“She knew she had reached that point of no return… it was one of those terrible moments. My sisters and I were absolutely at our wit’s end, not knowing what to do and how to help Mum. When the ladies from St Luke’s came through the door it was like the Ghostbusters had arrived.

“They took control and everything they did was efficient and carried out with compassion. Mum was immediately made to feel comfortable. She was a mad keen gardener, and the dining room was made into a bedroom for her so she could see her garden out of the window.

“For all our sakes we were immensely grateful. We knew which stage of the journey we were at, and we felt less stressed by the fact that she was out of pain and less stressed herself. We took it in turns to constantly be with her, and my father, Graham, who now lives with us.

“St Luke’s provides a fabulous service. It doesn’t matter who you are or where you are, they are there for you.”

Gordon will be at the Midnight Walk start line at Plymouth Argyle’s Home Park this Friday night to cheer on his wife, Penny, 14-year-old daughter, Hettie, and a team of Marchand Petit colleagues, including Sarah Baines, Sarah Douglas and Helen Harris, as they set off on the six-mile route.

Helen will be striding the streets in memory of her Dad, who received care from St Luke’s at home before his death eight years ago.

“Dad had a brain tumour and St Luke’s was wonderful for our family at the time and helped him remain at home,” said Helen, Associate Director of Marchand Petit’s Modbury office. “I’m walking to support the hospice and to raise awareness to help others. I don’t think you really understand what St Luke’s does, and that it’s not just an inpatient unit, until it touches you personally.

“It’s a charity that is close to my heart and it’s nice to get involved in something like this and raise money for such a great cause. St Luke’s is a huge resource for people in their time of need, when they don’t really know what’s available. They were invaluable for us, and very supportive for friends who have also lost their parents.”

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Ella’s Midnight miles for Grandma Doffy

A little girl has set her sights on fundraising in memory of her Great Grandma, so that other families can have the same support she did during such a difficult time.

Ella Honey Casey, 6, from Leigham, will be walking the three-mile route at our Midnight Walk on Friday in memory of her Great Grandma, Dorothy Honeychurch – or as she knew her – Grandma Doffy, who died earlier this year.

Ella Honey’s mum Emily, said: “After being diagnosed with terminal cancer in March this year, Doffy took the brave decision to be looked after by St Luke’s in April. Doffy was there for two weeks over Easter and the staff couldn’t do enough for myself, Ella and my youngest daughter Daisy. Doffy was treated with so much dignity and respect and we were given so much support and comfort from everyone, from the volunteers and support workers to the nursing staff. It is hard to put into words how kind and compassionate St Luke’s were in our time of need.

“Whilst we were at Turnchapel we talked to the nurses about the Midnight Walk. Ella was so excited that she could help other families to have the same amazing care we had at such a challenging time.”

Ella Honey will be walking alongside her mum and Nana (Clare Honeychurch) on the night, bringing together three generations in memory of a fourth.

The determined six-year-old has been hard at work fundraising and has already surpassed her £100 fundraising goal on JustGiving.

Emily added: “She is very excited and has been asking friends and family who knew and loved Doffy to help with fundraising. In preparation for the walk, she has been doing lots of extra long walks around Wembury and Saltram ready for her big adventure!”

Like Ella Honey, many of our Midnight Walkers are walking in memory of those special people who are no longer with us, while striding forward to secure the future of our hospice services at home, in hospital and in our specialist unit.

Registration closes for our Midnight Walk, sponsored by Michael Spiers and Marchand Petit, on Tuesday at 5pm, so it’s your last chance to sign up. Already signed up? If like Ella Honey, you can raise at least £100 in sponsorship we can achieve collectively our goal of delivering enough for our St Luke’s hospice teams to care for 100 families at home. Wouldn’t that be amazing?

Sign up and set up your JustGiving page here.

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Tour de Moor: We ride as one for hospice care

 

It’s bold, it’s brave, it’s big-hearted and it’s the best fun you can have on a bike while backing your local hospice. Yes, St Luke’s Hospice Plymouth’s ever-popular Tour de Moor cycle event returns on Sunday 8 October with plenty of on and off-road challenges, new and old, to thrill and delight every rider, regardless of age or ability.

Are you ready to get on your bike and join us to embrace the mud, sweat and gears of this exhilarating on and off-road experience in the wilds of beautiful Dartmoor? Feel a sense of belonging, purpose, and achievement as we ride as one to raise funds to support hospice care in our community.

Our Tour de Moor is best known as an adrenaline-packed two-wheel quest that can test the skills, fitness, and endurance of even the toughest of cyclists. But it’s so much more than that. With three distances and difficulty levels to choose from, it’s the ultimate inclusive family friendly cycling adventure. You can even join in if your bike is electric or you’re still using stabilisers, and for the first time there’s a unique challenge for school groups to discover.

Which route will you choose?

  • Beast Mode: 52km of cycling at its fiercest (12 years old and above, entry fee £35) – an enhanced route based on your feedback.
  • Adventurer Style: 33km of tough riding (9 years old and above, entry fee £35) ­– an exciting new route for 2023 based on Dartmoor National Park’s Granite and Gears Cycle Trail.
  • Mini-Moor: 11km ride along Drake’s Trail (suitable for the whole family, entry fee £15)

Your fee covers our costs to run this event, but it’s your sponsorship and generous donations that really make the difference. If everyone commits to raising a minimum of £100 you’ll be helping as a collective to provide a full package of care at home for 100 local families at their most difficult of times – and you’ll be entered into our draw to win a fantastic prize.

Sponsored by Print Copy Scan, a local supplier of printers and copiers, our Tour de Moor challenge departs from Harrowbeer Airfield (near Yelverton) on the Sunday morning and finishes there, too.

Join us as we ride as one!

Sign up today here.

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Holly Heroines – A beautiful light in everyone’s life

This year’s Midnight Walk will be a poignant one for so many. Especially for a group of women walking in memory of a special friend described as ‘a beautiful light in everyone’s life’.

Holly Hacker from Ivybridge, was diagnosed with cancer six years ago. Sadly, in January this year, at the age of 40, Holly passed away after bravely fighting for so long.

In Holly’s honour, a group of her friends decided to get a team together to take on our Midnight Walk on Friday 7 July to keep their memories of such a beautiful friend, daughter, sister and auntie alive.

Holly Heroines7 is made up of seven women including Holly’s two sisters-in-law and her close friends. The teammates are: Laura Hacker, Maggie Hacker, Tracey Keslake, Natalie Potter, Molly Joslin, Laura Reed and Kelly Thomson.

Holly’s close friend, Kelly Thomson has described the special memories they have of Holly. She said: “Holly was a kind soul, her smile could light up a room. Her brother Aaron has commented that the picture on our JustGiving page stops him in his tracks when he sees it on the news feed. That’s how I remember her…smiley.

“She was a good friend, sister, daughter. She would see her Mum every Saturday for a fry up and then go off shopping together. She had a good sense of adventure but drew the line if it involved water or heights. Although we did get her on a river cruise when visiting Scotland!

“She was very generous, caring and truly a great friend. She was always there if you needed her any time of day. She would stand her ground if needed and could be firm. She had a special look that you knew if she looked at you this way she wasn’t amused, something I saw quite often being the joker of the trio!

“She really was a beautiful light in everyone’s life.”

Having taken part in our flagship event previously Kelly and teammate Tracey jumped at the opportunity to take part. “Having done the Midnight Walk before, as soon as we knew it was happening I already knew we would be doing it. Although I was hoping Holly would still be with us to do it too.”

The walk itself, kindly sponsored this year by Michael Spiers and Marchand Petit includes three different routes of 3 miles, 6 miles, and 13.1 miles. The women, like so many others, see it as an opportunity share precious memories and make new ones.

“I think we are all looking forward to spending time with each other on the walk and sharing stories and memories”, said Kelly. “We haven’t seen each other since the funeral, so it will be good to catch up with them. The girls are all wonderful individuals, and they are all like old friends already.

“The Midnight Walk has such an amazing ambience as you know that people there are doing it in memory of someone. So the support you get from strangers is amazing. It means a lot to us to raise money for St Luke’s as they do such an amazing job. They supported Holly and made her comfortable in her last couple of weeks and they showed great compassion to her family and friends. It can’t be an easy job for them, but we are so grateful to them for caring for our beautiful friend.”

The inspiring team are currently at the top of our team’s fundraising leaderboard, having already raised a fantastic £1,195 for our patient care. If every single Midnight Walker commits to raising £100 like this fabulous seven, the event will bring in enough for our St Luke’s hospice teams to care for 100 families at home, just like Holly’s.

Kelly added: “We are so overwhelmed by everyone’s generosity so far, and I know Holly would too be so proud. She is so missed daily but her memory will go on.”

If the Holly Heroines have inspired you, then why not sign up your team today for our Midnight Walk and make Midnight miles matter. Click here to sign up.

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Dying Matters Awareness Week 8 – 14 May 2023

Personal grief when you work in health and care

How we can become more compassionate around terminal illness, dying and grief in the workplace is the focus for this year’s national Dying Matters Awareness Week (8-14 May).

The devastating and often prolonged effect of losing a loved one will have been experienced by more than half of all employees during the past five years but offering the right support – in the place where many of us spend so much of our lives – is something many managers feel unconfident about, according to Hospice UK.

People often assume that those working in health and care are better equipped to cope with loss because they encounter it on a regular basis. In reality, whether you’re in a caring or support role at a hospice like St Luke’s, in a hospital or nursing home, or working as a funeral director, celebrant or spiritual leader, it doesn’t make it any easier to cope when terminal illness or bereavement comes calling in your personal life.

In fact, these extraordinary environments can present many situations that resonate deeply and make it harder for people to carry out aspects of their work, particularly in the early days of the grieving process.

Many of us will be very familiar with practical measures and advice for self-care that can be useful following bereavement, even regularly advising and supporting the loved ones and carers of people who die in our community. But, when we’re enveloped in the fog of our own heartache, it’s not so easy to listen to ourselves and recognise our own needs.

It’s comforting to know that there is always someone you can reach out to you if you are facing personal loss. In these specialist sectors of our communities we are often fortunate to be surrounded by professional, empathetic people who know exactly what to say to grieving friends and colleagues. They won’t shy away from asking how you are, listening to your worries or having difficult or painful conversations.

Sharing your feelings with colleagues is a good starting point but, depending on your organisation, your first port of call for formal support and understanding will usually be your line manager.

When you’ve lost a loved one, the last thing you need is to be under pressure to carry on working as normal. Compassionate workplaces and managers will give you permission to take time out to reflect, talk, and tap into things that can help you slowly accept your situation and begin to heal.

No two people’s grieving is the same. Each of us deals with our loss in an individual way and a good employer will be as supportive and adaptable as possible, taking into account the special circumstances we are faced with in our jobs and the need to keep services running.

Crossovers with cases you deal with professionally may inflame your personal distress. Maybe you have lost an elderly parent with the same degenerative disease as one of your patients or there’s a young person under your care who is the same age as a personal friend who has died. These are the kind of trigger points that can be avoided by accepting that someone else may need to step in to take over particular tasks for a while.

Many health and care organisations will have robust in-house policies for good practice when managing bereavement, including arranging compassionate leave and smoothing the way for your return to work when you’re ready.

Line managers can be prepared to handle personal bereavement within their teams by becoming familiar with their organisation’s bereavement and compassionate leave policies.

If you are a health care professional, you may already have established relationships with your local hospice and, like St Luke’s, they will probably be more than happy to offer you or your teams advice on how to cope with personal grief when death and bereavement are part of your job.

  • Common feelings after bereavement are anger, shock, numbness, sadness, fear, guilt and anxiety. You may also experience physical symptoms like difficulty sleeping and eating.
  • It’s OK to take time to process what has happened and look after yourself. Rest, try to sleep and eat well, get outside in the natural world and reach out for support from family, friends and colleagues.
  • It may be very difficult dealing with other people’s grief and distress while you are grieving yourself and a period of compassionate leave could be beneficial.
  • Try to retreat to a quiet place for reflection to punctuate your working day – perhaps a hospital chapel, a library or outdoors in nature.
  • Don’t be afraid to talk about the person you’ve lost and find comfort in rituals, a funeral and personal remembrances.
  • If you are worried how you are feeling, speak to your GP and consider external counselling. Services, like those provided 24 hours a day by Simplyhealth, can be invaluable – grief can often be at its darkest and most painful in the early hours when no one else is around. You may not think you need this straight away but grief can sometimes feel more difficult after the initial period of shock and realisation.

For more information on death, dying and grief in the workplace visit Hospice UK’s Dying Matters Awareness Week

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How chaplain Pat ‘happens by’ at Derriford Hospital

Jackie Butler meets a special person whose calm and comforting presence is hugely valued by St Luke’s Hospice Plymouth hospital team and those they care for.

The first thing that stands out about Pat Brenton as she walks through Derriford Hospital is her gentle, unhurried pace. All around her doctors, nurses and support staff stride purposefully to their destinations, while she strolls mindfully, always alert to anyone along the way who might welcome a kindly face and a confidential chat.

Some days she’ll leave her desk in the chaplain’s office to visit a ward and only get as far as the first bench along the corridor before being drawn to the side of a young lad worried sick about his grandma who is dying upstairs, or a woman in the throes of shock after losing her husband.

Impromptu encounters and casual arrivals underpin her approach as the hospital’s palliative and oncology chaplain, a role in which she works closely with St Luke’s Hospice Plymouth hospital team.  She likes to “happen by”, making it easier for people to welcome or reject her presence in the moment, although she does also pre-arrange some appointments.

“The less I say, the better. It’s about letting people have the space, especially St Luke’s patients,” says Pat. “They don’t necessarily always want to share their thoughts with friends or family. We just turn up and they can talk if they want or not if they don’t. I am not going to cry or be judgmental. We have that little bit of distance, which helps. Then, once they have consented to our visit, we can go back again.”

Pat, her four chaplaincy colleagues and a pool of trained and experienced volunteers are there for everyone in the University Hospitals Plymouth NHS Trust – patients, visitors and staff. Between them they visit up to seven out of 10 patients and families who are being supported by St Luke’s nurses and doctors. They try to make sure appropriate pastoral and spiritual care is there for those that want it, backing up the hospice’s compassionate expertise and advice, and the care of Derriford’s own clinical teams.

On Tuesdays, Pat joins the St Luke’s virtual morning meeting where she’ll listen in to Clinical Nurse Specialist Julie Ayers, Nurse Consultant Martin Thomas and the rest of the clinical team as they discuss existing and newly referred patients on their long lists. Bypassing clinical, care or discharge details, as the nurses and doctors talk, Pat picks up on each patient’s potential emotional or spiritual vulnerabilities, mostly sensing which individuals she should visit. It’s a seamless collaboration, fed as much by instinct and subtle looks as words.

“I like to think that I can get there before anyone asks me,” she says. Amid discussions around each patient’s condition, their prognosis, their discharge home, or transfer to St Luke’s at Turnchapel, and their loved ones who might be struggling, Pat will occasionally chip in to say she or a colleague have already been to see a particular person and will return, or that she’ll simply “happen by” to introduce herself and listen.

“I try to follow up as many as I can during the week with help from my colleagues. We have a good rapport with St Luke’s and an excellent trust between us and I really value their generosity to share this with us.”

Each person’s circumstances are unique, from complex scenarios where people’s lives have been tipped upside down by a catalogue of illness and painful bereavement, to those who are resigned to their terminal prognosis and seeking to live out their final days as fully as possible.

When there’s an urgent referral, the St Luke’s team can call on Pat or her colleagues 24 hours a day – one of them is always on duty. “They can refer someone to us any way they want – email us, ring us up or bump into us in the corridor,” she says.

Pat, who was a nurse many years ago, was ordained as a Church of England minister 18 months ago.

“I did a course in listening with the hospital and wanted to volunteer, but they didn’t have a vacancy straight away. They said I could come and help in the office in the meantime, so I did. When I became a pastoral care volunteer, I knew this was what I wanted to do. I spent more and more time on the wards. They couldn’t get rid of me! Gradually I realised my calling was to be here as a chaplain.

“I think I saw 240 relatives in the first year before I was ordained, working with former palliative and oncology chaplain Andy Barton before taking on the role myself,” adds Pat, who also now co-teaches the department’s training course for volunteers.

Although the roots of her vocation lie in her longstanding Christian faith, she stresses that her daily work has nothing to do with religion in the conventional sense and everything to do with humanity, compassion, and discretion. Pat wears a white collar while she’s on duty but doesn’t think it gets in the way.

“We approach in a very gentle way, so people feel comfortable and are able to be themselves. They can just be real because they know we are genuine and focusing on them, not ourselves. I try especially hard when I see someone is fearful, particularly at the end of life.”

With that thought in mind, it was fascinating to silently shadow Pat as she set off on her rounds visiting three patients in different wards who’d been mentioned at the St Luke’s meeting, insisting that, like her and the rest of the team, I take no phone, camera or notebook.

While a widow with a shock terminal cancer diagnosis waited for her transport to St Luke’s at Turnchapel – where her mother died a few years ago – she was relieved to quietly share with Pat the anxiety of knowing that it would be her final journey.

In a side room with a butterfly motif on the door to honour a patient at the end of life, Pat knocked gently to introduce herself to a man and his wife as they sat either side of the bed where his elderly mother was slipping peacefully away. They clearly found comfort in the chaplain’s presence and the chance to confirm the old lady’s faith and love of hymns.

Pat’s final call was a return visit to a man with a life-limiting illness and a bad fracture who the day before appeared to give up hope. But today he was chatty and animated, buoyed up by the St Luke’s team’s belief that he could return home to live out his last months or weeks with the right help. After firmly declaring his non-belief in God, he told Pat he felt the need for something spiritual to hold on to.

Back at the team’s office, next door to the chapel, we joined the other chaplains and volunteers to reflect on the morning and talk about anything that stood out or concerned us. That kind of support and back-up is vital when you’re listening to stories that are often extremely emotional, and Pat also makes sure she and the team open their listening ears to all St Luke’s team members.

“We try to support them confidentially on an individual basis, as well as collectively,” she says. “I will make a conscious effort this week to ‘happen by’ if someone in the St Luke’s team seems upset about something or not themselves.

“They do carry a huge workload. Where do you put all that emotion? They can come and dump it here if they wish. It can sometimes be hard to share with your team when everyone is in the same boat.”

Julie and the St Luke’s team feel privileged to have such a great working relationship with the hospital chaplaincy and access to their valuable support.

“It’s so reassuring for us to know that Pat and the other chaplains are there, not only for our patients and their families, but for our team too. Pat is a really calming presence and an incredibly warm and patient listener, and she seems to know exactly the right time to ‘happen by’, as she calls it,” says Julie.

When a St Luke’s colleague died suddenly at the end of last year, Pat held a quiet period of reflection in the chapel for the team, based on what they wanted – a poem a reading, and a candle lit in memory. The St Luke’s nurses and doctors also take time out on a weekly basis to come together in the hospital chapel for reflection, lighting a purple candle in remembrance of patients who have died.

“The chapel is a lovely place where everyone can come and sit in peace,” adds Pat, whose quiet, thoughtful, and confident demeanour seems to put everyone at their ease wherever she goes.

She and her colleagues are glowing examples of how St Luke’s and Derriford are working hard together as one big team to achieve the very best holistic care for patients who find themselves in hospital as they approach the end of life.

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The story of a St Luke’s collecting can

The story of a St Luke’s collecting can

What’s orange and black and (hopefully) full of cash? It’s me, of course. I’m a St Luke’s collecting can. I sit on the counter in shops, pubs, clubs, cafes, garages, pharmacies, betting shops and takeaways – anywhere with generous customers who like to fill my tummy with their spare change.

I don’t suppose you think about me much. I’m just there, instantly recognisable, wearing my distinctive St Luke’s logo with pride, as people kindly pop a few coins, and occasionally a paper note or two, through the slit in my head, knowing that their donation is going to support local families at a really difficult time in their lives.

That’s all you probably need to know, but there’s actually a lot more to discover about me and my hundreds of friends who are at this very moment dotted all over an area of more than 700 square miles around Plymouth, Devon and Cornwall.

We don’t just hang around in one place, you know. We’re vital cogs in St Luke’s well-oiled community fundraising machine and we’re constantly on the move. So, what does go on in the life of a collecting can like me? As I can only speak from my own experience – and I really do love almost every minute of it – I decided to spend a bit of time with someone who knows the ins and outs of the whole journey.

It usually starts with me and some of my mates in a big bag in a car boot (where I can feel a bit queasy, to be honest). But for one day only I was allowed to sit up front next to Ray Satchell, St Luke’s esteemed can collector, to follow him on his rounds and ask a few questions about the bigger picture.

Ray’s our boss. I’ll never understand how he keeps tabs on us all, but he’s very organised and has lots of charts and tick boxes and tools to work out when and where he needs to pick us up or drop us off.

Anyone can tell that he’s passionate about his job. Starting off as St Luke’s official can collector back in 2015, he hangs out with us three days a week, and then, as part of his new title of supporter adviser, he spends a fourth day out and about delivering leaflets and posters to promote St Luke’s big fundraising events, like Midnight Walk, Tour de Moor and Men’s Day Out. I’m not sure his brain ever switches off.

Ray always has his eye out for new supporters and one thing that really puts a smile on his face is delivering a St Luke’s can like me to a place that’s never had one before. He’s done that 78 times in the past year, and that’s 78 more opportunities for me and my friends to fill up with cash to support the heartfelt and comforting end of life care our organisation provides.

Like everyone else, we’ve just been through a bit of a tough patch. It was all going great guns until something called Covid put a spanner in the works. When all the shops, pubs and restaurants shut, and people had to stay indoors, it was pretty lonely – and hungry – for us cans. I know my stomach was rumbling.

Four years ago, we brought in £87,000 in 12 months. After Covid, our totals had dropped 25 to 30 per cent. Ray was a bit worried about how more people using contactless cards rather than carrying cash would affect donations, but he’s delighted that the cans are rattling well again now, and the amounts are starting to creep up.

He’s hoping this year’s can collection total will be around £60,000 – that’s enough to care for around 60 St Luke’s patients and their families at home. How brilliant is that?

But it’s not just about the money. We are the familiar face of St Luke’s that people see most often when they’re out and about in their local communities. We remind them that our wonderful hospice care teams are there to help when they need it most.

Quite often we’ll find ourselves sitting next to a can from another national or local charity, like the Air Ambulance or the lifeboats. I don’t mind that too much. It stirs up a bit of friendly rivalry and a certain satisfaction if you fill up faster than your neighbour, but we definitely fare better on solo duty!

Ray has divided the huge area he covers into 17 distinct patches, with a total of around 1100 businesses with cans displayed at any one time. There are between 700 and 800 cans in the city of Plymouth alone, with a few outreach areas – places like Looe and Torpoint, Kingsbridge and Salcombe on the fringes of St Luke’s catchment area. Each day he’ll make 20 to 30 visits with the aim of bringing back at least 15 full cans.

At quick win locations we cans are jam-packed within a couple of weeks – corner shops like Costcutter, Premier and the local Co ops are all reliable, apparently. In a lot of places it will take three to six months, or longer, before we’re ready to collect.

People’s generosity never ceases to amaze Ray, he says. The average amount inside a full collecting can is £25. In corner shops I’m used to people popping in their change when they come in to buy a paper or a pint of milk. Children can be really big-hearted too, giving me the 20p or 30p left over when they buy their sweets or crisps.

In the pub sometimes a group of pals will spot me and start chatting about a friend or family member who was cared for by St Luke’s before they died and then they’ll decide to show their appreciation by stuffing me with five and ten pound notes. I fill up pretty quickly then, I can tell you! People do feel very strongly about supporting their local hospice and that’s great for me.

Today Ray and I are on one of the long-distance runs, starting just over the Cornwall border in Launceston. A full can often weighs more than 3kg, so when Ray parks up in a town centre like this where there are quite a lot of stops, we get to ride on the trolley he keeps in the car. It certainly saves his back on a day when he could end up hauling around 30-40kg.

There are some lovely loyal supporters all around this North Cornwall community. At Westgate Greetings Cards a full can is waiting out the back and there’s another out on the counter with plenty of coins in.

Owner Trish Sampson agrees that St Luke’s is really popular with her customers.
Around the square at Finlay’s newsagents another of my pals is almost brimming over. They only ever collect for St Luke’s in there, apart from supporting the Poppy Appeal each autumn.

The local Coop, where they keep a can beside each of the two tills, the White Hart pub, the Co-op Garage on Western Road, and Greenaway’s Garage at Newport all hand over a full can and Ray replaces them with empty ones.

Of course, there’s always one of us on the counter in St Luke’s own shops, like the big store at Hendra Way in Launceston. Ray pops in there for a chat with staff member Colette Hardy and comes away with another of my well-fed mates.

With his heavy load safely locked in the boot, Ray drives us across into Devon and along the old A30 to Lifton’s Strawberry Fields farm shop and café where they hand over three weighty cans – an excellent result.

Our next stop is a trip down memory lane for me. I’ve enjoyed a couple of happy stays on the counter at Lewdown Village Stores in my time. It’s a fabulous, old-fashioned little sweet shop and grocery with a post office counter, and it’s great to see owner Elizabeth Copper still collecting for St Luke’s. She and her husband David have been running the place since 1969!

That’s 13 years longer than St Luke’s has been going! After a quick break to stretch our legs, get a breath of fresh air and say hello to the ponies in the beautiful and dramatic landscape of Dartmoor, we reach Princetown post office, our final call, and our last full can changeover.

As we drive back towards Plymouth and St Luke’s HQ at Turnchapel, I feel sad that my special adventure is coming to an end, but there are still a couple of important elements of my story to tell you about.

After Ray has locked us away safely at the hospice, trusty finance office volunteer Otto will come and relieve us of our heavy cargo, tipping out all the coins and notes – not to mention the occasional unwanted boiled sweet or bus ticket – bagging and totting up the cash, and recording the total for each can. It’s important that all our supporters know how much their cans raise and our supporter care team sends each of them a personal thank you letter.

Once Otto has emptied our bellies, we wait patiently in big plastic bags for Ian and Sue to fish us out. By the time these hard-working volunteers get their hands on us we can be pretty grubby, to be fair. It’s an amazing feeling when they give us a wash and a spruce up, with fresh labels ready for our next assignment.

These two clean around 2,500 cans a year, and they’ve been doing it for ten years now, getting through 60 or 70 collecting cans a day, as well as fitting in some of the big buckets that go round at events like Men’s Day Out.

That’s it, then… we’re back to the beginning of the story and we’re back in the boot of Ray’s car (feeling a bit queasy), excited to represent St Luke’s out in the community, each of us making a small but significant difference as part of the big fundraising jigsaw.

Before I go, I’d just like to remind you that however large or small the donation you drop into a can, we treat it with the care and respect it deserves, knowing that every penny counts when there’s such important work to be done.If you know someone who would welcome a collecting can like me for their business, just give St Luke’s Supporter Care a call on 01752 492626, email info@stlukes-hospice.org.uk or send us a direct message on our social media channels.

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Look after your loved ones this Make a Will Week.

 

Making a will is often a task we put off for another day. But recording your wishes is actually a very straightforward process, as well as an act of kindness for those you leave behind. With that in mind, St Luke’s is inviting people to take advantage of their Make a Will Week, which runs from 15 – 21 May 2023.

Community-spirited local solicitors are giving their time free of charge during the week to create wills, in return for a donation to our charity, with an option to also leave a legacy for St Luke’s. The funds this raises will allow us to continue our valuable end of life care and support services for families in Plymouth and surrounding areas for years to come.

Having a will in place can bring you peace of mind, safe in the knowledge that your wishes will be followed through after your death. For your loved ones, having an official record of what you want to happen will make an already distressing time a little bit easier for them. A will spells out exactly how you want your estate to be distributed, rather than everything you own being shared in the standard way specified by law, which might not match up with what you would prefer.

It’s especially important to make a will if you have children, grandchildren or other family members who depend on you financially, or if you want to leave a gift to people or organisations you care about. It’s also crucial to update your will when personal circumstances change, for example, if you get married or divorced, purchase a property, have children or grandchildren, or if a partner or other family member dies.

The generous companies taking part in St Luke’s Make a Will Week include GA Solicitors, Bright Solicitors, Windeatts Solicitors, Roper James Solicitors, SWLaw and Woollcombe Yonge Solicitors and they are available for face-to-face pre-booked appointments during the week of 15 – 21 May 2023.  We have also teamed up with the online will writing service Farewill, which will provide a convenient and quick way of recording your wishes without having to even step out your door.

St Luke’s Head of Fundraising Penny Hannah said: “As we get older it is easy to overlook recording our wishes for when we’re gone, but our Make a Will Week is an ideal opportunity to make or update your will and bring peace of mind for the years to come.

“People often forget that it is not always about sorting out the financial aspects. A will ensures your final wishes are clear. Your possessions and property are going to the right place, and the family and children you leave behind will be looked after.

Creating or updating your will is also a time when you can choose to leave a legacy to a cause close to your heart. For St Luke’s, it is the funds we receive through legacies that help us plan for the future so that no-one in our local community who has a terminal illness will have to miss out on compassionate care at the end of their lives.

Penny Hannah said: “Leaving a legacy to St Luke’s is a compassionate gesture that helps future generations and makes more of a difference to our patients and their families than you will ever know.”

To create or update your will, simply contact one of the solicitors taking part to make an appointment between 15 and 21 May, quoting ‘St Luke’s Hospice Plymouth Make a Will Week’.

Book your appointment today!

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Reflections from CEO Steve

With my retirement as St Luke’s Chief Executive coming up on 4 May, I want to take this opportunity to say what an immense privilege it has been to serve at the helm of our hospice for the past six years.

It would be far too difficult to home in on just one or two memories that I will take with me from my time as CEO, and my years as Deputy and HR Director before that, so instead I’ll share the overriding feeling I am left with as I approach retirement.

It really has been way more than a job – it has been the most incredible journey, working alongside our amazing staff and volunteers, and I speak from my heart when I say I am very proud of what we have achieved together, always putting the best interests of our patients and their families at the centre of what we do.

I want to say a huge thank-you to everyone I’ve had the pleasure of knowing and working with at St Luke’s. The dedication all our staff and volunteers show to our community day in, day out is second to none, and I say this recognising that maintaining such a high calibre of service is often very challenging in the face of growing demands on our hospice team. I am so grateful to have ended my career at a place where everyone cares so much and is working towards the same, shared goal.  

The decision to step away has not been an easy one, but I am retiring at the time that feels right for me, professionally and personally, and with the assurance of knowing that St Luke’s incoming CEO, Christina Quinn, is absolutely the best pair of hands to receive the reins from me.

She will be supported by the same great group of senior management colleagues I have been fortunate enough to work alongside.

For those of you who don’t already know, until last November Christina was Chair of our charity’s Board of Trustees. She comes with not only her trademark dynamism and many years’ experience at senior level within the NHS, but also the knowledge, wisdom and insight gained from six years of leading our governing body, during which time we have weathered the pandemic and gone through transformation.

I want to thank current Chair of Trustees Charles Hackett (and former Chair Christina), and every other member of our board for their support over the years. Being a trustee is a massive responsibility and they work tirelessly to steer our charity safely towards our vision. We could not do what we do without them.

As I prepare for my retirement (I’m still getting used to that word!) and then ‘decompressing’ from the huge responsibility of running a hospice, I want to let you know that I am not thinking of this as ‘goodbye’. While I won’t be interfering in the running of St Luke’s, I’ll be following St Luke’s with interest and great affection – and you’re bound to see me pop up, getting muddy at Tour de Moor and no doubt volunteering at Midnight Walk.

In signing off this last message as St Luke’s CEO, I want to say thank you again to everyone for their support in making sure St Luke’s continues to be the safe haven our community needs for anyone diagnosed with, or affected by, life-limiting illness.

Thank you.

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Inside our holistic special task force the Patient and Family Support Service

While our nurses, healthcare assistants and doctors are the daily frontline ambassadors for St Luke’s compassionate and holistic end of life care, behind the scenes another small and highly skilled team are helping patients and their loved ones deal with the intense emotional pain and personal hardships a terminal journey can bring.

Recently renamed the Patient and Family Support Service to better reflect what the team does, this band of social workers, support workers, students and trained volunteers are multi-faceted champions, making sure those in distress are offered the help that’s right for them.

It can be overwhelming when someone learns they have a limited time to live, not just for the person themselves but for all those closest to them. At the heart of everything the team does lies the desire to make things just a little bit better for the patient and their family, amid the sadness, pressured relationships, physical constraints, mental health problems, past trauma, learning disabilities, substance abuse or financial troubles they may be facing, while also upholding their legal rights and protecting their safety.

The team’s highly experienced social workers are service manager Helen Koffi-Young, Danielle Brown, Emma Hancock and newcomer Sarah Bedaton. They are joined by social and bereavement support worker Sue Martin, children and family support worker Lisa Carter and a core of around a dozen amazing volunteers, trained in befriending and bereavement support skills. Together they are a consistent and inclusive St Luke’s presence, following people wherever their journey takes them – from hospital or home to nursing home or the hospice specialist unit.

“A terminal diagnosis makes a massive impact on the whole family and we deal with a lot of mental distress. We try to be preventative and look at people’s strengths and current support, then what support the person feels will be useful to them, what support we can give and what may be there in their network already,” explains Emma. “Recently we have observed a big impact from Covid and people getting a late diagnosis. This can impact on people’s level of emotional distress and can at times lead to crises in their mental health.

“People are not just their illnesses. The illness is something that happens to them. It’s our job to ask and really understand what matters most to that particular person and look at what their goals are, big or small. How, for example, could the day be made slightly better for them?

“We give people a voice and let them know they are heard. We let them talk about their anxieties and fears without judgment. We use active listening and empathy, helping people process their feelings about what has happened in a safe space. We use counselling skills and other therapeutic approaches, but we are not a counselling service, nor are we there to replace social services but work alongside them.

“We are involved in training and increasing awareness of safeguarding for adults and children, when there is abuse, neglect or self-neglect, and we are there as a consultancy service to support St Luke’s doctors, nurses and healthcare assistants.

“We work with social services to support people who may be subject to or at risk of abuse or neglect working to support and empower them and put them at the centre of decisions about their lives.”

At any one time the team can be dealing with as many as 150 people – patients, carers and the bereaved – building trusting relationships that can go on having a valuable impact in their most difficult days.

Sometimes it’s simple actions that make a big difference. For example, if someone has received a terminal diagnosis and doesn’t have family or friends close by, having one of the team’s befriending volunteers visit once a week for a chat, telephone regularly or take them out for coffee can help them feel they are not alone as they approach the end of life.

However, many of the situations they face are extremely complex. Even if someone’s troubles initially look straightforward, there can be a deep layer of issues beneath the surface that needs the expertise and experienced input of the team’s social workers and support workers.

For patients, the emphasis is always on understanding what is important to that person and their family. There’s an urgency to try and address matters that are causing the most anxiety, whether emotional or practical, and they work closely with other St Luke’s teams, also connecting and signposting to other agencies when it’s appropriate, such as the CAB for financial issues.

“We look at someone from the point of view of their entire life, their environment and their close relationships, and make sure they are empowered and know they have choices. We look at what can they do for themselves, physically and emotionally and try to build on their own strengths, while assessing the level of risk involved,” says Emma.

“For instance, getting themselves washed and dressed might be painful and tire someone out, but if they have a little help with the ordinary things, maybe it can free up that time and energy for something they enjoy doing.

“Sometimes a patient will have been the sole carer for someone with learning disabilities or mental health issues. Is there someone else who can look out for them? Our team have worked with many people who are looking after an adult child and worked with social services to get the support they are going to need.”

Emma, Danielle, Sarah and Helen keep an acute eye on the law and people’s human rights, especially legalities around mental health and mental capacity, elements that often come into play when deciding where someone should be cared for.

“The Mental Capacity Act is used when someone is not able to make a particular decision for themselves due to issues with their cognition,” says Helen. “It’s about upholding people’s rights while balancing their safety. If someone wants to go home, we assess if it is safe for them to do so. Is there a risk that they will fall over? Can they call for help? We always look at ways that we can try to minimise risk to enable people to have their wishes met, without being overly restrictive. For example, if someone has advanced dementia, is there someone who can support them to remain at home? We look at what we could do to get that person what they want. And if we can’t make it safe for them, we help to explore other options.”

Sustaining carers is a hugely important part of the team’s work. “It’s really important we listen to carers about their needs, provide emotional support, help them with difficult conversations around care and getting support packages from adult social care and the NHS,” adds Sarah.

The demand for bereavement support has significantly increased. When someone close has died or is going through the final stages of life, a period of bereavement support from a staff member or bereavement support volunteer can help family members with the initial stages of grief, or boost their strength to cope a little further down the line when the reality of the situation has sunk in.

“We are often working with people who are in a crisis and facing the most difficult time in their lives. We try to give continuity in bereavement support, with three initial sessions before we review their needs, and we can provide up to six where needed,” says Sarah.

Sometimes the team will need to refer the person on to an outside voluntary organisation for ongoing support, or to specialist mental health services if their distress deepens, working with partners in the community to get the right level of support for people’s individual needs.

When it’s a child or young person affected by bereavement, they will try to begin supporting them before their loved one dies, helping them to make and hold onto unique memories of that person through St Luke’s own Patches initiative. If it’s their parent, grandparent or carer that St Luke’s is looking after, they will work with their school or nursery and sometimes CAMHS NHS mental health services, to make sure there is a solid network around them and plenty of support and advice for whoever will be caring for them, especially if a child has extra needs because of a learning disability or any other additional needs.

Patient and Family Support Service may be a more fitting name for the team, but no title can adequately describe the magnitude of what they do on a daily basis, which also extends to best practice and how services are developed, teaching inside and outside St Luke’s.

Helen says: “It is a privilege that people let us into their lives and we all value the precious time they give us. I am really proud of the social workers, support workers and volunteers. They all make such a difference in the work they do and without fail are skilled, compassionate, empathic and effective advocates for the people they support.”

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